CBD Patient Testimonials
CBD Patient Testimonials
About 1000 patients have consulted us for CBD by late 2019. We have found CBD to be useful for many long-term conditions. Patients are generally seen just twice. The second visit is a shorter follow up consultation about a month after CBD has been started. This is an important opportunity to discuss how the CBD is helping, discuss dosing and other medicinal cannabis options. At follow up patients are asked if CBD is No Good, Good, Very Good or Excellent. We have grouped patients into these four categories (see below) that can be audited separately: CANCER, PAIN, EMOTIONAL & NEUROLOGICAL.
Patients have sent us these stories and given me permission to publish them here. We wish to thank patients for their stories and invite any further updates. Patients are invited to ask us to delete their stories if they wish, for any reason, without compromising any ongoing treatment. Some have been edited slightly for clarification.
Many cancer patients have been too ill to write their stories, however they often tell us that CBD or Sativex (CBD + THC) eases pain, nausea, anxiety and improves appetite and sleep. Medicinal cannabis can reduce the side-effects of conventional cancer treatments.
October 2019, W.A. age 82, spinal pain
Last year I completed Dr Gulbransen’s months trial with Tilray 100 CBD oil. The reasons I wanted to do the trial was to address my increasing spinal pain. For which the Hospital were giving me eight paracetamol 500m a day. This did help take the edge off, but the cost was my being rendered very unaware, every day: stupid, unawake, directionless, vague.
After a few days of the trial, I had stopped the paracetamol, and without pain enjoyed the month like a normal person. Able to stand and sit etc without aid! Unfortunately at that time the cost was prohibitive to continue, I had no choice but to await a more doable cost, which, with changing attitudes, would hopefully be soon.
October 2019, J.M. age 55, fibromyalgia
I have found the CBD oil to be totally life changing. I sleep up to 6 hours uninterrupted. My pain has been hardly noticeable – randomly I’ve hardly had a hot flush. Unfortunately I’d need to sell my house to afford it. 25mls is only going to last me a couple of weeks, taking it 3 times a day.
I live in hope that one day this product will be available affordably. I’m so delighted to have had the respite from myself, I’ve felt pretty normal. Waking up and getting up easily has been rather wonderful.
March 2019, H.L. age 8, chronic pain from Ehlers Danlos
Firstly I would like to thank you for seeing H and give you an update. The CBD has changed H’s life she is almost pain free and sleeping properly. Her mood had improved dramatically as has her engagement at school. She is still only on the minimum dose of 0.25ml [25mg] morning and evening, we cannot believe how this has given our little girl a quality of life we were not sure she'd ever have.
Secondly I'd like to ask for your advice, we have encountered some issues - in particular a Dr [name deleted] at Starship. We met with this doctor prior to bringing H to see you where she offered pregabalin and tramadol to manage H’s condition. We were uncomfortable with these due to their strength and highly addictive nature.
Since starting her on CBD both her physio and OT have seen significant improvement. We let her know we wanted to trial this first before considering any of the powerful drugs she had offered.
Long story short I received a phone call from Dr [name deleted] on Friday, telling me I was doing something illegal and unsafe, and asking where I had got this "stuff". I provided a full explanation as to what CBD is and informed her about ratios of THC to CBD etc and the legalities around it. She did not concede that it was perfectly legal and said she was going to have to look into it. Her arrogance and lack of knowledge surrounding this astounded me. Yesterday we received a call to say H's Physio was going to be put on hold. We called to discuss this, where we were told she had to ascertain the safety, as she did not feel it was safe to give to children and thats why she was putting H’s care on "hold".
We asked for justification to the "hold" on her physio and was met with nothing but arrogance and disregard to the points made. During that phone call we also found out she was completely unaware of some of H’s prior diagnosis and treatments yet willing to prescribe these drugs. We are now going down the formal complaint route, as the way in which she conducted herself and her accusations were appalling. We feel that she has taken exception to the fact we have chosen another route and now is making things as difficult as possible for us to the detriment of H. We know you have probably faced a lot of adversity surrounding the use of CBD, and hoped you could offer some guidance.
April 2019 - We called the service manager at the end of last week and H’s care has been reinstated. She would not discuss the circumstances which led to her care being put on hold and said the complaint would be dealt with in due course. The most important thing is H can go back to Physio.
H’s pain level has drastically reduced and all joint inflammation seems to have gone :)
July 2019, M.G. age 48, low back pain
After 13 months of living with severe excruciating pain all throughout my lower body due to a spinal surgery going wrong and having to take up to 36 pharmaceuticals a day I booked an appointment with Doctor Graham Gulbransen to enquire about medicinal cannabis as a possible alternative. After the initial consultation, Dr Gulbransen prescribed me a trial of Tilray 100 CBD oil. Within 25mins of taking my first dose, I noticed a small decrease in my pain levels and felt a little more comfortable sitting or moving around. It wasn't a huge change but there was a change.
Throughout two weeks using the CBD oil I noticed some considerable changes. My pain levels decreased and I managed to start cutting my morphine doses down to almost half of what they were with almost no withdrawal symptoms, my bowels returned to a more normal frequency, my sleep patterns changed a little for the better, my depression and anxiety symptoms seemed to taper off a bit and I had a better overall feeling of wellbeing.
Due to the financial strain of purchasing the CBD oil I was unable to get a second bottle and within days of finishing the bottle, my pain levels increased and generally felt terrible again and had to restart high doses of opiate pain meds.
Dr Gulbransen is a great doctor and really cares about his patient's wellbeing. I highly recommend booking an appointment with him if your GP is hesitant to prescribe, you are interested in how medicinal cannabis products may help you, and whether they may work for you.
March 2019, A.G. age 44, migraines, anxiety
Health conditions I had before taking the CBD Oil:* Painful spasms/migraines caused by dystonia in neck/jaw
* Tremor caused by dystonia
* Chronic blocked nose which causes me to have panic attacks from not being able to breathe through it and the feel of suffocation
* High level of anxiety and insomnia caused by all of these health conditions
After taking the CBD Oil for nearly 3 weeks, I have found:* The migraines have reduced in frequency
* Anxiety has decreased and I have not had a panic attack since taking it when I was having a couple a week beforehand
* I have also found it easier to fall asleep at night and continue to stay asleep where as before, I was waking up a couple of times in the night and barely getting any sleep.
I feel with continued use and possibly with taking a higher dose (which the expense of it limits me to do), I would experience even better results. It is very easy to take and I have not experienced any side affects so far.
I would recommend it to anyone suffering from similar health problems to myself.
March 2019 Mr O.D. age 36, fibromyalgia
The CBD oil that you prescribed to me has been nothing short of life changing. It's incredible the difference that I have since I started taking the oil. Before I came into my health issues with fibromyalgia I was a very extremely active person at the gym 5 days a week / paragliding / hiking / cycling & loads of physical work in the garden and my job as a field engineer its a very demanding work on a number of different levels. All of this came to a stop last year as my body seemed like it had just given up and I was left in some great deal of pain on a daily basis, I was taken out of the field work in my job and put into the office as I was unable to perform my duties my exercise was restricted to short walks with the dog as its all I could manage with a low energy levels and constant pain. Cannabis was my only real saver from this daily pain it gave me better flexibility to move with less issues so I was able to take on normal tasks at home. I received the CBD oil and started taking it on the 14th of February, I saw an almost immediate change to after consuming .25ml, by lunch time the pain was 50% I had more energy and flexibility the pain in my back slowly disappeared over the next two weeks to the point now where I feel completely normal and have returned to my normal active self that Is was before, it blows my mind that this is such an effective medicine and treats my symptoms with just a few drops under the tongue - Im an advocate to Cannabis for a long period of time, but I now have a new found level of respect for how seriously powerful this plant truthfully is.
An example of how profound the effect this CBD oil has been for me:Early this year in January I was fed up with laying around and decided that I needed to just push my fitness a little more, I took a walk on flat ground of about 3kms which left me in a some pretty bad way pain up my spine in my back and exhausted I slept as soon as I reached home and felt worse for days after.
March 17th after using CBD oil for around 3 weeks, I managed to largest hike of my life 44kms climbing more than 3000m of elevation with a 9kg pack on my back stretching over 3 days of some very full-on terrain. I completed the hike with some trouble in the beginning. By the third day I was able to endure full days with little stopping and good energy!
I have now returned to my normal field work and Im extremely happy / pain free on a daily basis.
One IssueI’m subject to random drug testing at my work, after returning home to I drug tested myself and found that I’m failing for THC - Not just a little fail either it’s a solid fail, I’m well aware of how my body processes cannabinoids and I regularly test myself with test kits that I have at home to understand how long the THC takes to disappear from my system. I can tell you with some confidence that the CBD oil as trace amounts of THC which is by NZ law just fine they can contain unto 2% THC in a CDB oil as per the information on the MOH website.
So I have this great solution to my health issues by using CBD oil but it’s going to make me fail a random drug test which will result in me losing my job, I plan to talk to my manger about this issue so we can talk through it together what I think is going to help is if I have a letter from you stating that my CBD oil is a legal prescription and its possible for the oil contain trace elements of THC which would possibly show up in a drug test would you be able to help me with a letter along this lines?
SummarySo CBD oil is working for me better than I could ever imagine.
Lastly I’d like to personally thank you for taking on Cannabis and being one of the first doctors in NZ to make it available to people, your work has given me back my normal active life.
May 2019, J.B. age 76, arthritis pain to joints, anxiety
Since seeing you on 5 April I have been using the cannabis oil you prescribed and following the initial build-up you recommended have been taking 0.5ml in the morning and 0.75ml in the evening. I have had no joint pain other than my shoulder which arose from an injury strain that I treat with an anti-flam massage regularly in the evening before going to bed when I gain some relief from the massage and heat from the electric blanket.
The changes in my lifestyle have been subtle rather than dramatic. I can now stand up without help, walk around the house without my walker and my level of anxiety has decreased. My biggest problem now is dealing with the shoulder pain and also the anxiety and occasional panic attacks, which have become firmly established over a period of 27 years.
I had a visit from an Elder Care Doctor last week. He had been sent by my own GP to look at alternative pain relief. He was impressed with my degree of mobility and was happy for me to continue with the Cannabis Oil treatment as he felt that he could not offer me anything better than your treatment.
The best result of all so far is that I have not found it necessary to take Maxigesic tablets for pain since starting the cannabis oil treatment. By the time I got to see you I was needing to take the tablets every three to four days. Without that medicine I hope my kidneys have had a chance to recover - all thanks to your treatment. I still have some lower back pain while preparing the evening meal late in the afternoon and I take two Panadol Osti tablets about 4 to 5pm.
May 2019, W.A. age 70, chronic abdominal pain, nausea
After only a couple of weeks of taking the oil I am pleased to say my nausea and pain levels are less severe.
Nausea and it’s symptoms are nowhere near as debilitating and I feel my appetite has slightly improved. My stomach and abdominal pain would usually be so bad, at times acute, I seldom left home - this has become more tolerable - I hadn’t realised just how bad it’s been. Morning brain fog with nausea and headache has also eased.
The sharp pancreatic pain in my chest and through to my back and down the arm have totally gone.
I’m slightly sceptical with any medication, but have to say I do feel improved already and looking forward to living a more normal, better quality of life. With improvement I’m sure bouts of depression will also be just a memory.
June 2019. J.S. age 57, anxiety and depression
Although it is only 5 days since I started taking Tilray the impact on my mood has been pretty much immediate and very positive: I am significantly less anxious and feeling more robust and motivated. My sleep is much better.
The effect on my pain levels has also been positive but more modest although it is of course early days yet. I am currently on 0.5ml twice daily and am continuing to take my existing meds. I’m keeping a twice daily record of mood and pain levels and sleep quality.
March 2019, A.C. age 31, anorexia (ED) & emotional distress
I thought I would let you know that I am finding the CBD oil really good. Although my ED behaviours are still very much there, and my mood is low, the medication has definitely taken the sharpness out of the constant anxiety I feel, and at times I even forget I am anxious! I am currently facing a number of stressors in my life, in addition to the ED, and I do believe the oil is helping me tolerate them more easily. I am on a relatively low dose 0.25mg twice per day, so will look at increasing this. I have picked up my second prescription so may see you again in a month or so for another script.
April 2019, D.G. age 46, emotional distress
I would like to thank you so much for being in this space of wellness, it has simply changed my life for the better, I no longer feel manic or stressed and my anxiety is manageable and settled. I now have clarity of thought free from the committee in my head which I have never experienced before. I have the normal emotions like everyone does, but it no longer sits in my head and I feel able to control those dark emotions with ease. I am calm and focused all day, a feeling years of prescription pharmaceuticals has never allowed me. I never imagined I could control “the committee” in my head with a natural based product, and given my disease of addiction I am so pleased to be free of “pharmaceuticals” and able to get on with my recovery with clarity and calmness. I would be more than happy to have anyone of your patients or colleagues contact me to discuss my experience at any stage.
May 2019, A.P. 2 ½ year old, seizures, spasms
Seizures, spasms since birth. Very underweight. On AED (anti-epileptic drugs). Breathing difficulty with baclofen, stopped. I can't thank enough for the medication that you have prescribed for my girl Alisha. I have seen an improvement in her spasms, she is relaxed and eating well. We are close to finishing the first bottle of medication and hoping to see you again soon. Once again many thanks and much appreciated for everything.
May 2019, R.S. 4 year old, autism
Day 1-3 Observations with CBD. Social Connection and Interaction:There are new signs of acknowledgement to others around her evident in behavioural responses with an implied opened awareness to share and communicate verbally. There are many small examples where differences are noticed, a few are listed below:
Most behaviours are not necessarily new, but 'Enhanced':
- Continued response when name is called with conscious eye/facial contact, prompt actions when asked to do something.
- Interest in what others are doing by observing
- Showing more willingness to follow and join play with cousins, high-five interaction
- Used flashcards to show mother pictures while saying vowel sounds of image
- Clear signs of changes in meal routines show acceptance to eat what is given and even in one instance voluntarily reached for a slice of cooked meat at the table and ate it all.
Something New:These are two examples of new noticeable changes that show and confirm positive progress.
- Sang along with a song playing on the radio in the car.
- Using Two words in a row: 'Me Too', 'Ok Mummy', 'Thank You Mimi' (sisters nickname).
There is a wonderful change hard to explain that is happening where we see R acknowledge in closer detail the world around her and especially with those around her. There is a willingness to interact and respond where she includes us during spouts of activity. Thank you soo much for providing such an opportunity for healthy living.